On all our visits with Tristan since May, he has been trying to tell us something. It kind of sounds like “uncle.” In fact, the first weekend in May, we took him to a hotel for a shorter overnight visit. He would repeat this word over and over. We were not sure what the exact word was, so we did our best to distract him. It didn’t work out great, but what else could we do? Finally, I texted one of my brothers and asked if he would do a zoom call because Tristan keeps saying, “uncle.”Continue reading
The other week I dropped Tristan off at his group home. I chatted with one of his group home staff, Benny. I told him Tristan had a great weekend. I asked how Tristan has been for him. He filled me in on one of Tristan’s antics.
Benny said, “I went into the bathroom one day and there were 3 lightbulbs sitting on the bathroom sink counter!”
I chuckled as he said this. That is definitely a Tristan thing. Over the years, Tristan has been fixated with light bulbs at home. This is a phase that comes and goes. Apparently, it is back!
This conversation made me think of some of the other light bulb stories tucked in the back of my mind.
At one point he wouldn’t stop unscrewing the lightbulbs in his bedroom ceiling light fixture. I actually had to tell a new respite worker, “When it gets dark outside Tristan’s room will be dark because he has lost the privilege of having light bulbs.” I thought to myself “Who say’s that?” (Parents like me who work 24/7 to keep their special need child safe!)
Thankfully, the worker said “I understand and I don’t judge.” Inside I was thinkging. Whew! And a quick arrow prayer: Thank you Jesus.
For a period of time….
He would unscrew the light bulbs from the front and back porch lights. We would wait until he was sleeping and the we would put a light bulb back into the socket. Then in a day or two the light bulb would be gone! When we looked over the porch railing we would find it on the ground. Broke from the fall into the mulch, but not shattered. After replacing the porch lights a couple of dozen times with no further success, we gave up. He won!
We finally had to tell visitors ” Wait there’s no porch light” and quickly install a lightbulb. If company was on the way we would install a light bulb 5 minutes before the arrival time. Seriously I am not making this up.
I wish I could ask Tristan “why?” Instead I am left wondering what is his hidden message. We know he does a lot of things for attention. Does he do this to say “Look you didn’t pay attention to me for 3 minutes so this is what I can do?” Or is trying to complete his own personal challenge like “Let’s see if I can do this before someone catches me.” Sometimes, I like to believe these are little love notes that he leaves. Like “Hey I’m thinking of you and I want you to know it.”
Like I often say to him, “Tristan when we get to heaven I have a lot of questions for you.”
I hope you enjoyed another healthy dose of laughter from our home!
I was so happy on Friday July 3 at 4:00 PM. I could hardly believe my eyes. I was cleaning and organizing my oldest son’s room when all of a sudden, I found my Nike Dual Fusion shoes! They were behind a shelf in this closet. Clearly our teenage son did not do this! Tristan framed his older brother. I picked up the shoes, and walked to the kitchen, and said, “Tristan look I found my shoes!” He just smiled. He knew exactly where he put them. It just took me about a month to find them.
Enjoy another healthy dose of laughter from our home!